Home

So we are home! It has been quite the transition, however. Cory did not take a good liking to the tube in his stomach. He is the 1 in 20 that it does not go smoothly for, go figure. We came home Friday night with Cory sedated basically to keep his pain level controlled with his stomach spasming out of control trying to push the tube out of his belly. This is what happened last time he had the tube and I swore to him that it would not happen again (so much for my promises!).


Since then he has been doing much better, his stomach does not hurt as bad and he has not been taking as much pain medication since we have been home. His nausea is under control now. I now have control of feeding him through his belly with the tube, which is the greatest blessing right now. He is sitting up and walking around more then he has been in the past month or so (I can't remember my sense of time anymore).

I replaced his patch last night which was a little stronger than what he was used to. It basically helped with the pain, but caused him to be drugged up so bad that he could not sleep. Again, he is the rare case where normally if you get too much drugs it makes you tired, but him it makes him loopy and wired. So I had to cut off some of the patch today to lesson the dosage, hopefully he can come back down to earth now that he is not so overdosed on the pain meds. This morning he came downstairs with a mission to move the buss stop from the front of our house. He was telling Traci this and he was so determined, I had to explain to her that he is a little overdosed on the drugs right now so his want for the bus stop to be moved is a little exaggerated.

I do have to say that the bus stop is very annoying with the kids screaming and all waiting to get on the bus every morning at 7:30am, but he has not said anything about it until this morning. So I think the bus stop is in the works to be moved already, Cory's mission is accomplished (thank you Traci, Nicole and Connie). Oh my goodness, what a riot he is on drugs huh? He just thinks he can start moving bus stops and all.

He just went on a walk to the end of the street and back home!!!! Okay, this is like the best day ever for me, let me just have a wonderful moment of joy that he walked today. I am making him walk everyday outside so if anyone wants to stop by and take him for walks that would be lovely. Also such a small and silly feat for a normal person in a normal relationship, but he also came in while I was typing this and put his hands on my shoulders and said 'I love you.' It scared me half to death, didn't know what was going on since I am so used to him laying and suffering. I seriuosly thought a stranger had broken into our house. It was just one of those out of this moment 'moments' I guess that I can explain.

I just want to say thank you, thank you, thank you to everyone out there who is praying for us and pulling us through this mess. Please don't stop praying for us! We had a ward fast yesterday and I hear it was amazing. I am so grateful for everyone, we would not be here without ya. There are too many things that friends and family have went out of there way to do for us that I can not list them all, but they have touched our hearts and I am so grateful to be so loved by so many wonderful people.